The hours ticked by today and I finally figured that since it was Good Friday that I was probably not going to hear from my team. But around 6:30 pm, Dr. H called with the results of my bone marrow biopsy, cytogenetics, and flow cytometry reports.
In a nutshell, my CLL percentage is up from 20-30% to 50% in five months. The P53 deletion is still a thing. And my donor cell percentage continues to inch downwards little by little. You know how when you think of the Lord, the phrase is “less of me and more of Him.” Well, that was the goal with my donor! But it’s going the other way. :/
Dr. H is meeting with all the various doctors who head up the various CAR trials and is trying to figure out which one I will qualify for and will be the best fit. I mentioned before that there is a big question regarding the NK trial, but the Phase 2 T-cell trial might work. She told me tonight that there is even a trial through Baylor that she is looking into. So I have absolutely no idea. Please pray for my team as they assess these various options for me.
Until the end of April when I go back to see Dr. H (then early May when I see Dr. W, my leukemia doctor), I will just be patiently waiting. They have given me some suggestions to try to help with the fatigue, which has gotten progressively worse, so I will work on that for the time being. And I will enjoy the sunshine, the flowers, the warm weather, sitting on the porch with my sweetheart, going to Oletha, family, friends, good food, conversation, and all the other good gifts that our Good Lord has given.
And then we’ll take the next step. Thank you for walking and praying with us along this journey.
Because of Him, it is still a Good Friday.
“Praise be to the God and Father of our Lord Jesus Christ!
In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead.”
1 Peter 1:3