I got a call from Dr. Shah this morning to tell me that the
30th birthday surprise party I was planning for my daughter, Bethany, would have
to be cancelled…or at least rescheduled until significantly later. Sorry, baby girl. (Yes, she and I have already
talked.) Cancer can be a real
party pooper!
This whole trial thing was supposedly going to be a walk in
the park! I give them 21 vials of
blood; they make little killer dudes out of my T-cells, put them back in eight
weeks later, and whalah! Well, I
learned this morning that it’s not going to be quite that easy. Even though we expected some possible
side effects, we did not expect this….
They have now decided that I will be inpatient and receive a
3-day round of two chemos [fludarabine (which I’ve had) and cytoxan (which I
have not)], then a day to receive the cells, and a day to make sure I don’t
have any weird side effects from the cells. So just five days or so, as long as everything goes as
planned. Dr. Shah sounded almost
as upset as I was when she told me.
Neither of us wanted to have to go through all this again. But she said that it would be better
because it would make room for the T-cells to do the work they are being created to do. Well, when you put it that way….
I already know the side effects I have with fludarabine :( and cytoxan is the one
that makes you lose your hair!
Man, I just got it all fluffy again! She said that the dose may not be enough to make me lose it,
but we won’t know until we’re there.
So, here we go again. Low
blood counts, fever, nausea, chills, no appetite…. Let me see, chemo or planning my baby girl’s birthday
party? Pretty sure I’d rather plan
a party! But if I have another
round of chemo now along with these fighter T-cells, maybe I’ll be planning her
40th birthday party ten years from now! That would be most excellent!!
So, sweetheart, plans have changed for now. But know that Mama’s got Plan B
cooking! Cancer ain’t gonna take
the party outta this gal!
I have followed you on your journey from the beginning, because I too have CLL and I was diagnosed "young". I want you to know you have been such an inspiration to me and I know to many others. Thank you for venturing into uncharted territory which will hopefully develop new and successful treatments for CLL. Praying for an easy time during the chemo and strong killer T cells to eradicate your disease. Brenda
ReplyDeleteThank you for your encouraging words! May God uphold you as you continue on your CLL journey, and may He bring us all the gift of healing! Blessings!
DeleteTamara